Events & Fundraisers

Events

DetailsDescription
Date: November 2023
Link: Donate
Event by: Rebecca Jobling
In Rex’s memory, I will be walking 79 miles in November to raise awareness in Epilepsy. If possible we’d love for donations. Even as little as you can afford to but I understand times are also tough 🫶🏻
Date: November 2023
Link: Donate
Event by: Nicola-Rose Elliot
My sister Kerrie and I are going to be running 79 miles in November to raise awareness and in support of epilepsy in memory of our nephew Rex and all the children affected.
Date: November 2023
Link: Donate
Event by: Kerrie Jobling
Myself and my sister Nicola are going to be running 79 miles in November in memory of our nephew Rex and in support of other children suffering from this awful disease.

Fundraising for a cure

For donations, we are linking directly to CDG-CARE that help fund research for all types of CDG’s, including PIGA. Below you can find the 2 different payment methods

Method 1

We suggest trying the Give Lively method first as this keeps track of the funding received

https://secure.givelively.org/donate/cdg-care/help-us-fund-a-cure-for-piga-cdg/wayne-tomlinson

Method 2

Using PayPal’s donation button

Drug Repurposing Project for PIGA-CDG